ME/CFS and long Covid Resources for Patients and Clinicians

May 30

In addition to helping individuals with ME/CFS and long Covid through individualized, one-on-one coaching, I also help clinicians, like therapists and other health professionals, learn how to better support their ME/CFS and long Covid clients.

If you’re new to ME/CFS and long Covid, below are the most helpful resources on the web to get you up-to-speed on what you need to know.

Concise Review for Clinicians from Mayo Clinic Proceedings (2023)

“Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome”

Web-based Resources for Patients and Clinicians

Bateman Horne Center

https://batemanhornecenter.org/

Solve M.E. – Research and Advocacy

Resources for Clinicians

Resources for Patients & Caregivers

ME/CFS Clinician Coalition

https://mecfscliniciancoalition.org/

Centers for Disease Control

ME/CFS Basics

Long Covid Clinical Guidance

For Everyone

CDC Patient Toolkit

For Healthcare Providers

Finding a Doctor

Physician Database with Reviews and Ratings

ME/CFS Doctors and Research Centers in the U.S.

Physicians Serving the Greater Philadelphia Area

Susan Levine, MD (infectious disease specialist, ME/CFS and long Covid)

Kelly Anne Spratt, DO, Penn Cardiology (a client recommended for POTS)

Dr. Alexander Welge, Integrative Psychiatrist (for fatigue-informed treatment of mental health, including complementary therapies to improve gut health and mitochondrial health)

ME/CFS Diagnosis

Diagnosis Decision Tree

Teir 1, 2, & 3 tests (can be shared with a clinician)

For Clinicians

Assessing Functional Capacity for Patients with Post-Exertional Malaise (PEM)

Medications

ME/CFS Clinician Coalition

“Currently, there are no treatments approved specifically for ME/CFS. But there are a number of pharmacological and non-pharmacological treatments that a clinician can use to help reduce the severity of specific symptoms and improve the patient’s quality.”

Research on Coaching and Chronic Fatigue Syndrome (ME/CFS)

Frontiers in Neuroscience

"Coaching may assist patients to identify and prioritize their goals, becoming aware of their personal resources, developing strategies for managing symptoms, and building skills to increase their self-efficacy and active engagement in the treatment process" (Araja, D. et al, 2023).